Finding the energy

What a day.......Tuesdays are a day off for me so I just kind of let the day start whenever. Because Jack is not a late sleeper I can always rely on him to get me up no later than 7am. So this morning he decided it would be 6:30. After Maddie was fed, changed and breathing treatment done, I had to convince Katie and Jack it really was Tuesday and they needed to get ready for school.

After everyone was fed breakfast including Maddie's "second breakfast" off to school Katie and Jack went. Maddie and I made a few short errands post office and pharmacy. We couldn't be gone long because the physical therapist would be at the house by 10am. Waiting for the therapist to show up I had a brain storm (Phil hates these). I decided to take some leftover paint from a previous project and give a mantel shelf a face lift.

After therapy and while the first coat of paint was drying, we left for more errands. We went to the doctor's office for a weight check. We have gotten out of the habit of going and should not have. Until Maddie is 20 lbs I will still worry about her weight. Today she was 16lbs 3.5oz. I was hoping for just a little bit more. However it is a gain and she really is thriving and more mobile than ever. So, I will take the gain and move on.

I had to make a few calls this morning to find Maddie's breathing treatment med. The generic version is like gold right now and until June 30th free generics. I had to call three pharmacy branches to find the med. So after the doctor's office we went to go pick it up. When we got home and had lunch I put another coat on the mantel shelf. Then I got really ambitious and changed Katie and Maddie's room around. Or should I say back the way I like it. Katie way really excited.

After picking up Katie and Jack, making dinner getting the kids their showers. I needed to find something to do. I know as if I had not done enough already. However Katie is having difficulty staying dry over night. I have been staying up till midnight and walking her to the bathroom and again at 5am when Phil gets up. It is helping her stay dry and I have less laundry to do.

Tonight I decided to look through the kids baby books and figure out what I needed to do to update them. Katie is just missing a few items updated pictures, stories about her graduation and hair donation. Things that have occurred in the last six months. To my surprise I realized I had not put a single thing in Maddie's book about her surgery.

This event will take a few pages. I want her to know about it all for many reasons. Health reasons to know her medical history, it was quite an event in itself. This means something else too. It means that I need to relive it. I need to make her a time line and share with her everything that happened.

I think the little details are what was important because it showed me what a strong will she has. This will help her later in life. Even as an infant she showed me what she wanted and didn't want. I just had to be smart enough to read the signs and be her voice. I am not even sure how to begin. I also want to do it creatively, might be therapeutic.

Lately, I have been getting the feeling that August and September are going to be chaotic. I might get to go back to work full time? Phil may come back out of the field? Katie starts kindergarten, Maddie will celebrate her first birthday and in October will celebrate the anniversary of her heart surgery.

Our life is going to change again soon and I hope for the better. We have survived so far. I don't want to ever look back on this time and feel I wasted days. I want to get the most of them while I have them. Most days I always find the energy to get it all done. They say what doesn't kill you makes you stronger I guess that is why some of my friends call me She-Ra.

Headed off to take care of Katie and finally get to bed, 5am comes early.

TTFN