Tuesday, June 16, 2009

by 1:30 Tuesday

This day has been really unreal so far. I was awaken by Katie and Jack about 7:30 this morning. I had so much to do today I really wanted to be up by 6:30. Most of you know that due to the economy and Maddie's recovery I only work 3 days a week right now. Today is supposed to be a day off. So at 7:30 this am I woke up and looked in on Maddie the room was still dark from the curtains. I saw what looked like blood and I panicked.

When I turned the light on it was poo lots and lots of poo. Maddie's diaper had leaked poo and she was sleeping in it. I had 30 minutes to get her changed, fed, Katie and Jack dressed and off to pre-school so they could eat breakfast with their friends. We were a few minutes late but they had not reached their room to serve their breakfast yet. As I walked in Jack's classroom they were making his plate. WHEW!!! we made it.

So I get home and have 30 minutes before the first appointment shows up. We have some assistance with Maddie's recovery and Jack's behavior issues that all of these people come to the house. Jack's case worker showed up at 9 and we talked about him and I fed Maddie 2nd breakfast. We really like her and feel she is going to be able to help him. She will observe him in pre-school next.

When the case worker left I had 15 minutes to make sure Katie and Maddie's room was clean and vacuumed before the PT showed up. Lucky for me Katie had been keeping her room clean. About 5 minutes after I put the vacuum away she showed. What I did not know was that the case worker who oversees the therapist came to observe too. We talked about Maddie's recovery and how just 6 months ago Maddie could not hold her head up. Today she showed the therapist she could sit, crawl, stand.

They were all very excited for her. We even talked that instead of Maddie aging out at three she will probably age out of physical therapy at 18 months old because she is recovering so well. After PT I changed rooms again because it was time for Maddie to eat and the nutritionist was due in about 15 mins. So Maddie was weighed and measured. She only gained a few ounces but a gain is a gain, I'll take it.

The nutritionist was thrilled to see her. She said that you would have never known she had open heart surgery 8 months ago. She said looking at her today she would not need her to come out anymore. With her history and erring on the side of caution in another two months she will probably make the visits every 3 months for a year and then maybe age her out early too.

So by 12:45 all of this was complete and I had to strip beds. Maddie had her pooping disaster, Jack just needed fresh sheets and Katie accidentally wet the bed last night. So I put a load of bedding in the washer and I jumped on the computer while Maddie slept. I have had a full day and am ready to go to bed.

However it is only 1:30 and I still have worry about the rest of the day.

Hope your day is not as chaotic as mine. TTFN

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