I have spent so much time worrying and posting about Maddie I have left Katie and Jack out. Today while Maddie was napping I goofed around with Katie and Jack and took some photos. They turned out pretty well. Katie is doing really well. She really is getting prepared for kindergarten for the fall. We have been talking about it. I showed her the school and have to register her in February. Her teachers have been preparing her very well. She really is smart. I wonder if she is smarter than Jack and I just never noticed before.
Jack has really had problems at school. After talking to his teachers, the director and a county worker that came to observer him I have discovered a few things. He does have an attention problem but it has been caught early enough that his teachers and I have been working with him. The county worker was very helpful with tips to help with his attention. We have already seen small improvements.
It has also been suggested that Jack be moved to the elementary school in the fall for a peer 4 class. He is displaying very strong leadership qualities and this class will help this thrive. He would be put in a blended class. By blended he is in a class with challenged children both physical and mental challenges and other children like him without challenges. It teaches the challenged children to be in a normal classroom setting and Jack thrives on helping others and will learn by helping them. The director of the daycare thinks this is excellent for Jack and is helping us get him in. She has seen children like Jack before and after this program and has never seen it fail.
The best part about it is that he will get to travel with Katie to school every day but be in separate classrooms like the daycare. Jack will see her at lunch and outside, just like now. Jack gets out of school first and arrangements will be made to get both of them to after school care at the daycare so Phil and I can still work normal schedules. I really hope this comes together for Jack. It sounds like something really great.
Katie and Jack are really doing well. I have really been working with Jack and his attention issue. He is doing better. I bought him some new puzzles. It only took him about 5 minutes longer to do the new puzzles as opposed to the old puzzles we already have. It still kills me how smart he is. As if I have nothing better to do I just had to make new time for Jack and he is getting better.
Enjoy the photos below. TTFN
Saturday, December 20, 2008
Tuesday, December 16, 2008
Tuesday, December 9, 2008
The last few days
The last few days have been quite exhausting. Maddie came home from the hospital, Katie celebrated her birthday and we are still receiving a few gifts in the mail for her. She truly has been quite the ham when I wanted to take her photo with some of the gifts. I thought I would share a few.
Maddie went to the doctor today and weight 10lbs 14 oz. This is great considering a week ago she weighed 10lbs 1 oz that sent her to the hospital. She really is doing better. The breathing treatments seem to be helping to. I hope we get good results from the doctor in a few weeks.
I only had one photo of Jack. Hopefully in a few days I will have a few more.
Although I am exhausted, things are moving slowly in the right direction and we are very happy with the results.
TTFN
Maddie went to the doctor today and weight 10lbs 14 oz. This is great considering a week ago she weighed 10lbs 1 oz that sent her to the hospital. She really is doing better. The breathing treatments seem to be helping to. I hope we get good results from the doctor in a few weeks.
I only had one photo of Jack. Hopefully in a few days I will have a few more.
Although I am exhausted, things are moving slowly in the right direction and we are very happy with the results.
TTFN
Monday, December 8, 2008
back home again
Well, Thursday night I went home while my mom stayed at the hospital with Maddie so I could spend a few hours with Katie and Jack for Katie's birthday. I already had her birthday presents wrapped and picked up a small chocolate chip cookie. We had dinner together and laughed a little before I went back to the hospital. It was nice. THANKS Grandma Bacho!!!! And Linda for helping out with Katie and Jack while Maddie was back in the hospital.
Late Friday evening I was driving Maddie home. She had gained some of her weight back and was eating better. She did catch a cold. Because of a few issues with Maddie's diaphragm, she can not catch a cold. So it was caught early enough and did not turn into pneumonia. To help keep it from turning worse she is on an antibiotic for ten days and breathing treatments for 3 weeks. At this point we go back to the doctor to find out how she is doing. They did do an echo on her heart. I heard the doctor say it looked so good you can't even tell it was repaired from the inside.
So although the last thing I wanted to do is make that horrible drive back to the hospital, it appears to have been the best thing for her. I am still getting up every 3-4 hours to feed her to make sure she is getting the most calories possible. I am sure one day I will get some real sleep. We go back to the family doctor Monday or Tuesday. I have to call to find out when they can see us. We'll see what he says.
On top of all that was going on Friday afternoon about 4pm we get a call from the school telling us that Jack has a really bad case of pink eye. Unfortueately, Jack had pink eye one other time this year. I already had the medicine for it at home that he could be treated right away. His eyes were so bad the one was almost swollen shut. Today it looks ten times better, just a little blood shot. I really don't know how much we can handle at one time but I do not want to find out.
Hope everyone is trying to enjoy the Holiday Season!!!! TTFN
Late Friday evening I was driving Maddie home. She had gained some of her weight back and was eating better. She did catch a cold. Because of a few issues with Maddie's diaphragm, she can not catch a cold. So it was caught early enough and did not turn into pneumonia. To help keep it from turning worse she is on an antibiotic for ten days and breathing treatments for 3 weeks. At this point we go back to the doctor to find out how she is doing. They did do an echo on her heart. I heard the doctor say it looked so good you can't even tell it was repaired from the inside.
So although the last thing I wanted to do is make that horrible drive back to the hospital, it appears to have been the best thing for her. I am still getting up every 3-4 hours to feed her to make sure she is getting the most calories possible. I am sure one day I will get some real sleep. We go back to the family doctor Monday or Tuesday. I have to call to find out when they can see us. We'll see what he says.
On top of all that was going on Friday afternoon about 4pm we get a call from the school telling us that Jack has a really bad case of pink eye. Unfortueately, Jack had pink eye one other time this year. I already had the medicine for it at home that he could be treated right away. His eyes were so bad the one was almost swollen shut. Today it looks ten times better, just a little blood shot. I really don't know how much we can handle at one time but I do not want to find out.
Hope everyone is trying to enjoy the Holiday Season!!!! TTFN
Thursday, December 4, 2008
Unexpected Set Back
In the last two days Maddie decided she did not want to eat as much as she had been. She also had developed a junkie cough. In normal children you would just watch them to see if things got worse. For Maddie they are not allowed to get worse. I called the Doctor and we went to see him Wednesday afternoon. Maddie lost 9 oz. for her that was huge. So arrangements were made for her to go back to the hospital. About 5pm Wednesday afternoon Maddie was admitted back to Levine's Children's Hospital.
This has been an experience like no other and it was very difficult to do. Maddie's doctor expected she just needed to be back at the hospital for a few days and we could go home again. She is on antibiotics for the junk the xray showed in her chest. They are doing an echo cardiogram to check her heart. Maddie was to go see the surgeon today to find out when she would be allowed back to public daycare. This changes everything.
For me, besides being in the hospital again.....Today is Katie's 5th Birthday. I get so frustrated that Katie and Jack have to take a back seat again. Maybe we will be home before the weekend is over and all is not lost. We just need to get to her to eat more consistently and gain the weight back she lost. I will be at the hospital until she is released again. TTFN
This has been an experience like no other and it was very difficult to do. Maddie's doctor expected she just needed to be back at the hospital for a few days and we could go home again. She is on antibiotics for the junk the xray showed in her chest. They are doing an echo cardiogram to check her heart. Maddie was to go see the surgeon today to find out when she would be allowed back to public daycare. This changes everything.
For me, besides being in the hospital again.....Today is Katie's 5th Birthday. I get so frustrated that Katie and Jack have to take a back seat again. Maybe we will be home before the weekend is over and all is not lost. We just need to get to her to eat more consistently and gain the weight back she lost. I will be at the hospital until she is released again. TTFN
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