In the last two days Maddie decided she did not want to eat as much as she had been. She also had developed a junkie cough. In normal children you would just watch them to see if things got worse. For Maddie they are not allowed to get worse. I called the Doctor and we went to see him Wednesday afternoon. Maddie lost 9 oz. for her that was huge. So arrangements were made for her to go back to the hospital. About 5pm Wednesday afternoon Maddie was admitted back to Levine's Children's Hospital.
This has been an experience like no other and it was very difficult to do. Maddie's doctor expected she just needed to be back at the hospital for a few days and we could go home again. She is on antibiotics for the junk the xray showed in her chest. They are doing an echo cardiogram to check her heart. Maddie was to go see the surgeon today to find out when she would be allowed back to public daycare. This changes everything.
For me, besides being in the hospital again.....Today is Katie's 5th Birthday. I get so frustrated that Katie and Jack have to take a back seat again. Maybe we will be home before the weekend is over and all is not lost. We just need to get to her to eat more consistently and gain the weight back she lost. I will be at the hospital until she is released again. TTFN
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