I realize that I have not posted in a while and have alot of catching up to do. Most of you want to know about Maddie first so I will start with the obvious. Certain parts of her recovery are doing great. She is very alert and is really trying to do the normal things for babies her age. The best part about her days now is the babbling. I love to hear and see her chatter. The best way to describe it is that she really is a chatterbox. She no longer has to take her blood pressure medicine. We will know in 30 days if she can stay off of it permanently.
The things that she is trying to do but just can't quite get she is getting help with some physical therapy. She had her first therapy session this past Thursday. Although it wore her out, an hour is a long time, she did very well. They come out to the house and work with her in a familiar environment. They are helping her learn to learn to roll over and just working with some of her weaker muscles from being in the hospital for 22 days.
They most stressful thing about her recovery is the vomiting and severe weight loss. She has managed to collect some cold germs. Which for you and I is usually not a big deal. For Maddie trying to clear her throat she gags instead and accidentally throws up her entire bottles. This has been going on off and on for the past 45 days. She has been doing really well for the past 7 days, if she does not gain a certain amount of weight by her Thursday weight check she will go back to the hospital for testing. It is a struggle to get the calories in her, mostly to stay in her.
We will see what the the weight check and the doctor says on Thursday. TTFN
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