About 7 to 10 days prior to Thanksgiving last year things were just crazy. We were told that Madelynn would be moving to the 8th floor by the 12th of November. After talking to the doctors and seeing her at the hospital something was still wrong. She was having a really hard time eating and keeping the food down. I told the doctor's I didn't think she was ready to move to the 8th floor.
This was a very difficult decision for me. I so desperately wanted her to be moving up however I had an itch I just could not scratch. Something still wasn't quite right so the doctor's kept her in CVICU for two more days, just to be sure and monitor her eating. Since I stopped working thinking she was going to the eighth floor I just lived in the CVICU for two days.
The day I walked with Maddie and all of our belongings to the Progressive Care unit from CVICU was very bittersweet. We had developed relationships with the hospital staff. We were going to miss them but it was time. I was all smiles, it was like we were in a parade. Everyone in the hospital was waving at us and wishing us luck. But the rest of the world had no idea what we had just accomplished.
The rest of the world was going to work, school, the gym, sleeping in they had no idea what happens in these hospital walls. Think about it 16 days prior Madelynn had open heart surgery there was talk about her being in the hospital for 6 weeks. When in total she would only be in the hospital 21 days that is three weeks. Three days later from that move we were on our way home. I really had no idea how sick she still really was. Or should I say how badly her body had taken a beating and how long it would take her to recover.
Watching Maddie at the party we had (Friday October 30, 2009) to celebrate her recovery it was like I could finally exhale. She was so funny. Trying to talk to everyone and saying "Hi". Just a little social bug. As of her last weight check Maddie is still not 20 lbs. I was so disappointed. I so wanted her to be 20 lbs by the 1 year anniversary. But watching her at the party, my disappointment melted away and I just laughed and smiled at her.
I remember the day she was discharged. It was such a long day it took almost 8 hours to get her discharged and my body was just itching to leave. I wanted to get her out of the hospital so bad. Linda, Katie's god-mother, came to the hospital and sat with me all day while we waited for them to say...."see ya later......good luck...." Maddie even had a travel home outfit compliments of Grandma and Grandpa Bacho. I was just hoping once she was home she would start eating better and we would home free.
This was not what God had in mind and I was completely unprepared for what would happen over the next two weeks...............
TTFN
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