WHEW!!!!!!!!!

There are very few days I have ever wished this on but I am so glad today is just about over. My day started at 5:30am when Phil woke Maddie as he was getting ready for work. I fed her and then Jack woke up and shortly after, Katie was awake. I dropped Katie and Jack off at school and my day just picked up speed from there.

Maddie had her therapy and it went REALLY well. The therapist was really please that Maddie had worked so hard. Maddie work so hard in fact less that 5 minutes after therapy Maddie fell asleep on the floor. I made a few calls. One in which was to the Women's Institute asking for all of my medical records from my ultrasound when I was carrying Maddie. I am going to turn them over to the Pediatric Cardiologist to see if they will help in the research of heart babies like Maddie.

There is a part of me that thinks the ultrasound tech new something was wrong with Maddie's heart and she was over ruled but the doctor. The tech spent a lot of time on Maddie's heart during the ultrasound. I questioned the tech. But something tells me she saw something. I want to turn the info over to the heart research so that maybe it can help the next heart baby.

We then had to get ready to leave. We went to the pediatrician. Maddie had a weight check 14lbs 2oz and she got probably her last RSV shot. Then we had to trek some days what seems like cross country to the pulmonologist. This was a very frustrating visit due to what seems like laziness on the part of the nurse. I knew we were going to this visit and that the Dr would want an x ray of Maddie's chest. Trying to be the pro active parent, last Thursday I called the Dr.'s office asking for a referral to get the x ray done at the Urgent Care by my home. Since it is through the same Hospital System the pulmonologist can see all of Maddie's x rays from the first one showing the Corartation to the one taken today.

The nurse incorrectly gave the info to the Dr and he said no need. When we got to the appointment (36 miles one way) the Dr wanted the x ray. I almost exploded. It was almost time for Maddie to eat, Katie and Jack would need to eat dinner soon and it was almost rush hour traffic. The radiology department we had to go to was for the whole hospital. After losing my cool back in the pulmonologist office I told them it was all through the same hospital system make it so I can go home and get the x ray done near the house since they didn't feel it necessary to do what I asked 6 days ago.

By the time I got home from the other hospital, getting the x ray, picking up Katie and Jack it was almost time for Maddie's breathing treatment. Needles to say about 8pm I sat down to eat. The Dr did call me back about 5:30pm and apologize for all the chaos created and told me he would call me again this evening to tell what he thought of the x ray. When he called the second time he said things are looking really good. He said we could stop one of the meds but continue with the maintenance drug. This ultimately was good news.

So, here is the day in a nutshell......I travelled over 100 miles today for Maddie's medical needs, lost my cool with a nurse for laziness.......and oh yeah I almost forgot the best part of my day......I discovered that I accidentally sewed my bedspread to my electric blanket (yes read that last line again).....A few days ago I sewed a hole in a patchwork quilt that had accidentally been torn by the kids. I figured the best way to fix it was to lay it out on the bed and repair it. However, I did not realize that I went too far with the needle and now my electric blanket is attached to my quilt. At least now I don't have to worry about Phil taking too many covers when he rolls over.

It made me laugh anyway.......Have a good Hump day tomorrow!!!!!

TTFN