Wow what a difference a few days makes and lots of prayers but anyway. I thought you all would like to see that my smiling girl is back. She really is doing great. She lost a lot of weight the focus now is getting the weight back on. She lost about 20% of her body weight and is so thin. But each day she gets weighed and slowly she is gaining the ounces back. They are feeding her high calorie formula.
I am getting ready to leave to go spend the evening with Maddie and be there in the room when the doctors do rounds in the morning. She is no longer a baby elephant. As you can tell she is on a nasal cannula (hi flow). She has to be off the hi flow and just on regular oxygen before she can be moved to a room to get ready to go home.
Today I spent the day with Katie and Jack while Daddy and Mamaw spent the day getting all the smiles. I am so happy to see them again. She probably will not be able to go back to public daycare till around Christmas time and we will have to be very careful with germs. She is not allowed to have a flu shot this year. Needless to say we will be keeping her out of the public as much as possible. But she is truly on the mend and the nurses are have a great time dressing her. As you can tell by the socks. I again think everyday I don't know how the nurses do their job they truly are amazing people. I am glad Maddie could bring them some joy.
Thanks again for all the thoughts and prayers. TTFN
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