Wednesday, May 22, 2013

Today's the Day!! Today's the Day!!!

This morning about 10:30 Madelynn will be graduating from Pre-School. I am sure there will be a part of me that will be sad and want to cry but, I am very excited for her. She will have reached a peak in the mountain of life at one time I didn't think was possible. So to celebrate her achievement I thought I would share a little photographic journey.













































 
For each of these pictures I could share something the photo does not tell you. But instead I thought you could just enjoy the journey.
 
Congratulations Madelynn!! Mommy and Daddy are more than thrilled to share this milestone with you. Each day you amaze us at all of your accomplishments. We love your personality and EVERYTHING that comes with it. Thank you for showing us our life would not be complete with out you. Mommy and Daddy love you to the moon and back, to infinity and beyond, forever and ever.
 
TTFN~

Tuesday, April 30, 2013

Need Reminding......

Tonight I talked to a friend who is having a very difficult time in her life. It made me so sad I wanted to cry for her. If nothing else to give her a hug. The average divorce rate in the US is about 50%. When you have a family with a child with a special need the percentage jump to as high as 80-90%.

Marriage is hard to begin with. Adding a child with some type of health condition makes it that much harder. Having lived this road for a while it is no joke. Some times it requires taking a step back and remembering the simple things.

10 Ways to Love

1. LISTEN - Without interruption
2. SPEAK - Without accusing
3. GIVE - Without sparing
4. PRAY - Without ceasing
5. ANSWER - Without arguing
6. SHARE - Without pretending
7. ENJOY - Without complaint
8. TRUST - Without wavering
9. FORGIVE - Without punishing
10. PROMISE - Without Forgetting

I am far from perfect and need reminding every once in while of these ten words so I thought I would share them. Hoping my friend sees them and finds peace in her difficult time.

TTFN~

Wednesday, April 24, 2013

The house that built me.....

About two years ago a childhood friend who I hadn't seen in 25 years pulled me aside and says, "Do you know why we didn't always get along.....We both wanted what the other had."

I was very taken back by this comment.

She continued to say, "There was never a doubt that your parents loved you......."

I dreamed about this comment and what it meant. After a while I felt pretty horrible.

 I could remember wanting to go to a school dance and not having a new outfit to wear. My mother took the sewing skills her already deceased mother taught her and altered a skirt out of something she already had.  I still wanted a new outfit. My father was really angry. I was such a selfish teenager and completely ungrateful. Little did I know the skirt she altered for me was wrapped in love. My mother loved me so much she wanted to make sure I would look my best and I didn't see it that way.

This year my parents will be married 45 years. There is never a day that goes by that I am not 100% sure that my mother loves my father and my father loves my mother. I may not have had all the latest things but I always had the greatest the love of my parents.

When I think back about the house we grew up in a dam of memories breaks and everything comes rushing back and I can barely breath.

I remember the single rose bush that would bloom every summer on the side of the house. The big tree on the side of the house we would play around. The brick patio we built a clubhouse on and sunbathed on. Jumping the pricker bushes and sometime falling into. The stairwell we would fly down on our pillows. All the birthday parties and holiday dinners we had around the dining room table.

Being awakened by church bells, and walking across the street to church and still being late. Diving off the top bunk and scaring the crap out off my mom. Shooting the bb gun in the closet and accidentally getting shot with one. Sharing a bedroom with a baby sister. When we would get grounded to our rooms, my brother and I would send notes back and forth with his toy jeep.

Playing super heroes and jumping out of the TV cabinet my father was finishing. Watching my father build the train table in the basement. My parents would have friends over and they would play cards and watch TV. On the hot summer nights sitting out on the front porch watching people go by. Walking to the river to watch the fireworks for the fourth of July.

Fighting with my brother and calling my mom at work to make him stop. Like she could do anything from across town. Sitting on a bee and screaming half way down the block. The sitter thought I was dying. Coming home from school and finding the dog sitting on the portable dishwasher.

When I stop thinking about it 20 more memories will pop in my head. The result however will always be the same. My parents made their every effort to make sure we knew we were loved.

Don't get me wrong I caused lots of trouble, was regularly grounded, and claim responsibility for more than 25% of my mother's gray hair.  My father had this habit of rubbing his head when he would get frustrated with me. I also claim at least 25% of the lack of hair from that motion. No matter what they never gave up even though some days I am sure they wanted to.

When life gets complicated we want to retreat to our "happy place'. My husband's "happy place" is Fort Macon at Atlantic Beach. For me, my parents first house in the old neighborhood.

I hope one day my children look back never doubting I loved their father or that he loved me. I hope their "happy place" is their first home. I hope as many times as they were in trouble they have equal or more happy times to laugh themselves silly. I hope they have a house that helped build them.

TTFN~

Thursday, February 14, 2013

Happiness is a choice!!


Happiness is a choice!!!

To different people Happiness is different things. Happiness could be finding 20 bucks in a winter coat, languishing about something you need to do only to find someone did it for you or discovering you and your spouse have the same afternoon off.

 As a Heart family we have had to make many choices. To agree to turn your child over to a surgeon to save a life, a feeding tube because bottle feeding is too stressful on the heart or trust complete strangers with the health and well-being of your most treasured gift.

After what can be a traumatizing hospital stay, most families assume being at home will help in the recovery. While many times this is true, it can be very scary; the ups and down of weight gain, creating proper sleep schedules or just plain finding your way without hospital staff to guide you.

All of these things are incredibly emotionally exhausting. As heart parents we make a choice to fight, fight with every ounce of our being. We go without sleep, miss meals and sometimes even forget what day it is. However, I promise you each day we find Happiness.

For us Happiness was the surgeon reporting the surgery went better than expected, the first time Madelynn smiled eight days after surgery, and a year after physical therapy Madelynn was walking and entering elementary school to register Madelynn for kindergarten.

This experience could have ruined my family in so many ways. But we made a choice and that choice was Happiness. We chose to find Joy in even our worst days. Hoping you find Happiness and you make it your choice.

Happy Congenital Heart Defect Awareness Day!!

TTFN~

Wednesday, February 13, 2013

Guest Blogging......

A few weeks ago I was contacted by another heart mom who has a blog. She wondered if I minded having Madelynn's story posted. She decided to collect other's stories and post them on her blog for Congenital Heart Defect Awareness week. Yesterday Madelynn was the highlighted story. Click here to see it.

Kuddos to Stephanie for such a HUGE undertaking. Thank you for finding creative ways to spread CHD Awareness this week. I didn't plan on re-posting Madelynn's story on my own blog since Stephanie was highlighting Madelynn. Thank you for allowing Madelynn and I to invade your blog.

HAPPY CHD WEEK!!!

TTFN~

Tuesday, February 12, 2013

Congenital and Acquired.......


When I made my list of things to blog about for CHD Awareness Week, I felt like I was ready for the week. Then today came and I had writer's block. How does that happen? I had mentally made a commitment to do this and I was drawing a blank. It has been a long day and my post still isn't done.

 

Too lazy to get the laptop downstairs, I decided I would blog off my nook and see what inspires me. I clicked on the web and it took me to the last thing I searched for on the web......blood clots.....it almost took my breath away. The last time I used my nook it was about midnight, two weeks ago, my father was being rushed to the hospital for chest pains.

 

I later found out he had a mild heart attack, the doctor found the blockage, worked his magic with a stent in the cath lab and 48 hours later he was on his way home. The advances in medical technology made this a very non evasive procedure for my dad. I was very happy my dad would be ok.

 

Once I knew this I told my children. They were visibly shaken and did not fully understand. They asked to see him. I explained the doctor told him to rest and promised we would see him soon. I was so glad everything worked out with the best possible result. He is one very lucky man.

 

During CHD Awareness Week we try to spread awareness about CHD. Some heart conditions are not congenital they are acquired. My dad's condition was acquired over time. Spreading Awareness about these events are important too. Encouraging healthy eating, exercise and being smart about choices you make to protect your body are good examples.

 

Just because you aren't the patient doesn't mean you might not become one. I urge you to please be aware of all your choices because you never know when your life will be altered.

 

TTFN~

 

Monday, February 11, 2013

SMACK!!! Looking for an answer......


Sometimes because Madelynn is so far past her surgery, I consider stepping back from the support group for heart families I am part of. Madelynn had one of the less complex heart conditions. With today’s technology and advances most children with her CHD are repaired without open heart surgery. Granted Madelynn had a twist to her CHD and would have still had to have open heart surgery.

The last few weeks I have really been wondering if this is the path I should stay on or do I need to find a new dirt road to explore. When I am truly unsure I will lie in bed and pray about it. I am one of these people who need God to almost smack me in the head and say, “UM……Hello Chelsea…..is this answer PLAIN and OBVIOUS enough for you?”

When I started posting for CHD Week Awareness I thought of things I would write about for each day. Made a few notes about each of these topics and set it aside until it was time to post. I work better this way and sometimes by waiting find a better answer than writing it all in advance. Today several things rang true for me about this process.

For starters I am going to continue to help support families in anyway God presents it to me and sometimes it is in the oddest forms. My “smack on the head” came when a family in Canada found my blog. They are concerned about a family member who might have an undiagnosed CHD. I shared with them about the pulse ox test, a few things we learned after Madelynn’s diagnosis (we should have known before) and told them I would pray for the best outcome.

The best outcome would be for there to be NO CHD. However, it does not sound like that is the case. So I went to work sharing with this family everything I knew and learned that might help them ask better questions and hopefully find the right answers, hopefully without overwhelming them. When I finished typing my response I thought, “Yes God, I asked you to show me the answer and SMACK!! I get it LOUD and CLEAR.”

You just never know who will cross your path I will always be ready to share. Please pray for this baby girl that her family finds the answers they are looking for and they do it soon.

TTFN~