Eight years ago this month I found myself standing in an urgent care with a doctor I had just met. He was telling me that he believed my 8 week old baby girl had had an undiagnosed congenital heart defect. As I sat there listening I believe I was in some sort of shock. The doctor told me to go home and wait for him to call me back. He was going to call in for an immediate second opinion and get back with me that day. Thinking back on that day the doctor must have been pretty certain something was wrong because he was able to get a second opinion on a Sunday morning during church hours.
Friday night I found myself in the same urgent care, with that same child but for a different reason. Let me reassure you she is ok, she just managed to obtain a little infection. But I will say it is all I could do to not hyperventilate when I walk through the door. I tried to get Phil to go to the children's hospital urgent care not far from our house, but he misunderstood and he brought me to this one. Sometimes it is all I can do to keep it together.
A week from tomorrow we will be celebrating Madelynn's "Heart" Birthday. One of the scariest most grateful days I have ever experienced. Tonight all of our Heart Family Friends are partying it up at the Camp LUCK 6th Annual Auction and Casino Night. It is one of the two major fundraisers that makes everything Camp LUCK does possible. I wish we could have gone. With our full soccer schedule and Madelynn still not quite 100% it was just not in the cards tonight. It made me sad because I love being able to support Camp LUCK in any way I can.
Because of Camp LUCK we have made some amazing friends. We have found a support system that understands the good days and bad. They understand the anxiety of the next check up, test results or when the next surgery will be. Sometimes you don't have to explain anything to them because they already know. Just knowing someone is with you or has been in your shoes makes the journey just a little bit more bearable. We have come along way since those very scary days October 2008.
Tonight if you feel so inclined to make a donation on behalf of Madelynn and all the Heart Kids that benefit from everything Camp LUCK does here is the link: www.campluck.com/donate/
You see Camp LUCK kids camp is FREE for all of the heart kids to attend and bring a sibling for a week. Not to mention all of the support available to help families through a journey they never thought they would be on.
Thank you Camp LUCK we are so sorry we have had to miss the event.
TTFN~
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